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Health information for parents of children and young people with Special Educational Needs

Pages in Health information for parents of children and young people with Special Educational Needs

  1. Health information for parents of children and young people with Special Educational Needs
  1. Guidance, links and contacts

Health Services in Coventry

If you have a learning disability, then you are eligible to join the Learning Disability Register through your Doctor's surgery. Being on the register is the first step to an individual getting reasonable adjustments and better support. Once this information is on the GP system, they will be able to access additional services, such as the Annual Health Check, and request extra support, such as easy read information, longer appointments and reminders, and help to make decisions.

Mencap have created a guide for all children and young people and their families which explains the benefits of joining the register. It also explains about the annual health check which anyone over the age of 14 with a learning disability is entitled to.

View a list of Health Services for children and young people with Special Educational Needs.

2015/2016 Choice Framework

The 2015-2016 Choice Framework is a guide to your choices about your NHS health care and treatment. Download the document to:

  • Help you chose your GP and GP practice
  • Choose maternity services
  • To take part in health research
  • To have a personal health budget
  • To travel to another European country for treatment
  • What you can do if you are not offered these choices

The Children and Families Act 2014

Council For Disabled Children Making it Happen: Improving Outcomes for Children and Young People with SEN and disability

The Children and Families Act 2014 is changing the way professionals and organisations work to support with children and young people with Special Educational Needs and Disability to make sure they get the support they are entitled to across education, health and social care. 
The Children and Families Act addresses this by introducing new duties for the health service to work with partner local authorities to improve outcomes for children and young people with Special Educational Needs and Disability. Getting this right will have major implications for the NHS and the health professionals that work with children and young people, including commissioners, managers and frontline professionals. 
To help health professionals understand their new responsibilities and how they can use the new framework of the Children and Families Act in their role CDC has been funded by NHS England to develop an interactive resource that. The resource is full of tools, films and examples from practice to help areas implement the reforms by learning from what other areas have done.

For further information and to see what resources are available visit the Council For Disabled Children website.

Care and support for deafblind children and adults - policy guidance

The Department for Health have produced a guidance which explains how local authorities should act in relation to care and support for deafblind adults and children. View the policy.

Mental health and behaviour in school

How to identify and support those pupils whose behaviour suggests they may have unmet mental health needs. Advice for schools.

This advice is for schools. It includes: how and when to refer to Child and Adolescent Mental Health Services (CAMHS), practical advice to support children with emotional and behavioural difficulties, strengthening pupil resilience, tools to identify pupils for likely to need extra support, where/how to access community support.

Information and advice is also available from Coventry and Warwickshire Rise.

Medical needs in school

The Department for Education (DFE)  has produced guidance for Local Authorities.

'Ensuring a good education for children who cannot attend school because of health needs - statutory guidance for local authorities' - January 2013

Local Authorities (LAs) must have regard to it when carrying out their duty to arrange suitable full-time education (or part-time when appropriate for the child's needs) for children who are unable to attend a mainstream or special school because of their health.

There is also statutory guidance for schools around supporting children and young people with medical conditions

Supporting pupils at school with medical conditions - Statutory Guidance for Governing bodies of maintained schools and proprietors of academies in England - 1 September 2014


The Patient Advice & Liaison Service (PALS) is a service that deals with patients', relatives' or carers’ queries and concerns regarding their health care, and can provide information on NHS services generally

To access further information regarding PALs.


Healthwatch Coventry is the new, independent consumer champion for health and social care in Coventry. Our job is to give you a voice and argue for the consumer interest of all those who use health and social care services.  This includes:

  • Parent/Carers rights in relation to health services (including mental health) and how you can be supported.
  • Sharing information confidentially about issues you, your child and family face when accessing/using local health and social care services.
  • Discussing the barriers and gaps in services you may experience in your child's health care provision.

Visit the HealthWatch website.

The Expert Training Programme

The Expert Parent Programme is training and information for parents of disabled children to build their resilience and confidence when engaging with health services. The programme includes face to face training, online learning modules and a toolkit of resources for parents. Further information is available from the Council for Disabled Children.

Get Your Rights

From The NHS Constitution website you can view the video 'Everything you need to get the most out of the NHS'. You have the rights when making decisions and choices about healthcare.   

Make it Happen

Funded by NHS England, The Council for Disabled Children have produced a resource 'Improving outcomes for children and young people with SEND/Disability' to explain the Children and Families Act 2014 and its implications for health services. The resource is full of tools, films and examples from practice to help areas implement the reforms.  

Resources and information for parents

The Council for Disabled Children have a series of documents available for parents and carers to help you get the best out of the health system. You can access Expert parent e-learning, the Expert Parent Programme, The Expert Training Course, and various other useful sources of information. 

The Local Offer

The Coventry Special Educational Needs and Disability (SEND) Local Offer brings together information for children and young people with special educational needs and disabilities and their families. The SEND Local Offer will cover services available to the public across education, health and social care:

  • Education: such as nurseries, playgroups, schools and colleges and support services like educational psychologists and SEN services
  • Health: children's and adult services including GPs, therapists and hospital services
  • Social care: such as short break services and children's and adult disability services.

Further information 

Further information about specific health difficulties can be obtained from the following organisations:

SEND Information, Advice and Support Service (IASS)

Open Mon - Thurs 9am - 5pm. Fri - 9am - 4.30pm


Tel: 024 7669 4307

Fax: 024 7669 5627


Limbrick Wood Centre
Thomas Naul Croft
Tile Hill

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