If you have a learning disability, then you are eligible to join the Learning Disability Register through your Doctor's surgery. Being on the register is the first step to an individual getting reasonable adjustments and better support. Once this information is on the GP system, they will be able to access additional services, such as the Annual Health Check, and request extra support, such as easy read information, longer appointments and reminders, and help to make decisions.
Mencap have created a guide for all children and young people and their families which explains the benefits of joining the register. It also explains about the annual health check which anyone over the age of 14 with a learning disability is entitled to.
The 2015-2016 Choice Framework is a guide to your choices about your NHS health care and treatment. Download the document to:
The Children and Families Act 2014 is changing the way professionals and organisations work to support with children and young people with Special Educational Needs and Disability to make sure they get the support they are entitled to across education, health and social care.
The Children and Families Act addresses this by introducing new duties for the health service to work with partner local authorities to improve outcomes for children and young people with Special Educational Needs and Disability. Getting this right will have major implications for the NHS and the health professionals that work with children and young people, including commissioners, managers and frontline professionals.
To help health professionals understand their new responsibilities and how they can use the new framework of the Children and Families Act in their role CDC has been funded by NHS England to develop an interactive resource that. The resource is full of tools, films and examples from practice to help areas implement the reforms by learning from what other areas have done.
For further information and to see what resources are available visit the Council For Disabled Children website.
The Department for Health have produced a guidance which explains how local authorities should act in relation to care and support for deafblind adults and children. View the policy.
How to identify and support those pupils whose behaviour suggests they may have unmet mental health needs. Advice for schools.
This advice is for schools. It includes: how and when to refer to Child and Adolescent Mental Health Services (CAMHS), practical advice to support children with emotional and behavioural difficulties, strengthening pupil resilience, tools to identify pupils for likely to need extra support, where/how to access community support.
Information and advice is also available from Coventry and Warwickshire Rise.
The Department for Education (DFE) has produced guidance for Local Authorities.
Local Authorities (LAs) must have regard to it when carrying out their duty to arrange suitable full-time education (or part-time when appropriate for the child's needs) for children who are unable to attend a mainstream or special school because of their health.
There is also statutory guidance for schools around supporting children and young people with medical conditions
The Patient Advice & Liaison Service (PALS) is a service that deals with patients', relatives' or carers’ queries and concerns regarding their health care, and can provide information on NHS services generally
Healthwatch Coventry is the new, independent consumer champion for health and social care in Coventry. Our job is to give you a voice and argue for the consumer interest of all those who use health and social care services. This includes:
The Expert Parent Programme is training and information for parents of disabled children to build their resilience and confidence when engaging with health services. The programme includes face to face training, online learning modules and a toolkit of resources for parents. Further information is available from the Council for Disabled Children.
From The NHS Constitution website you can view the video 'Everything you need to get the most out of the NHS'. You have the rights when making decisions and choices about healthcare.
Funded by NHS England, The Council for Disabled Children have produced a resource 'Improving outcomes for children and young people with SEND/Disability' to explain the Children and Families Act 2014 and its implications for health services. The resource is full of tools, films and examples from practice to help areas implement the reforms.
The Council for Disabled Children have a series of documents available for parents and carers to help you get the best out of the health system. You can access Expert parent e-learning, the Expert Parent Programme, The Expert Training Course, and various other useful sources of information.
The Coventry Special Educational Needs and Disability (SEND) Local Offer brings together information for children and young people with special educational needs and disabilities and their families. The SEND Local Offer will cover services available to the public across education, health and social care:
Further information about specific health difficulties can be obtained from the following organisations: